Today’s video is in response to numerous questions I’ve received from study participants and hopeful study volunteers who are frustrated because they cant seem to get a hold of anyone at the research clinic as they are looking for a clinical trial to join. In this video I explain why its so difficult to get a call back from a research clinic and also give tips for how to work your way around this frustrating situation.
Here are the links to our social media fans this week:
Community Anderson Research Center
Posts tagged pre-screening
We’ve been getting a lot of questions from potential study participants that are upset because they have recently been turned down for a clinical trial. Don’t give up, many times a study participant may have to call different clinics in order to finally come across a study that they can qualify for. This is not uncommon, but due to the fact that there are so many studies out there, most people will eventually find a clinical trial that they can qualify for if they are persistent enough.
In clinical trials, understanding and getting to know your study participant, is crucial. In all clinical trials, getting good quality data and feedback from the trial participants is the only way to measure the efficacy of the study drug. Don provides some suggestions for the clinical trial professionals out there on exactly how to do this.
Don shares how people going into clinical trials should be up front with what symptoms they really have and how the interviewer should probe more to find out what is really going on with the potential study subject. Often times, we’ve found that potential clinical trial participants, out of a strong desire to enter a clinical trial, will try to figure out what the research clinic wants to hear in order to qualify for the clinical trials that they are conducting. The problem with this lies in the fact that this data will be used to determine whether the new medications actually work, so future patients will be able to benefit. This can only be possible if study participants and research professionals can do their best to make clinical trials’ results as accurate as possible.
Don talks about a way to approach clinical trial study participants with statements that may start them talking about what is really going on with their lives in order to gather enough information to make a determination if they can qualify for your clinical trials. As we’ve seen before through some of our past interviews, sometimes clinical trial research clinics do not even bother asking their clinical trial participants about their side effects. This is not only bad practice, but also makes it dangerous for drugs to get approved without all side effects being disclosed in some cases. Don shares excellent advice for the research professionals on how they should engage in conversation with their clinical trial participants. For the clinical trial participants, this content is useful because you can now begin engaging in conversation with your study team and no longer need to wait for a signal from the researchers in order to start doing it themselves.